The TBI Chatroom |
She was taken to the Medical Center only a few miles away. THe doctors had to first do a CT scan, then put in an ICP monitor before discovering that they would have to operate to remove the clotting blood, some bone fragments, and some brain tissue. She was then taken to PICU. I didn't get to see her until about 9 the next morning. They told us the pressure in her skull was still very high. They said a normal pressure would read 10 to 20. Anything over that was life threatening. Haley's was in the 80's. We watched the numbers on that machine go up and down for the next 4 days. Each day the doctors would say " Well, the next 24 hours will tell". The pressure finally came down enough to take her off the ventilator, and begin to bring her out of the drug-induced coma they had her under. She had been fighting all that time by breathing over the machine. I spent the entire time in the hospital. I only left once to take a shower in two weeks.
After a few days they realized I wasn't leaving, so they just put me in a room down the hall. I was pumping breast milk for her every 3 hours pretty much round the clock. I also spent a lot of time by her bed praying out loud, singing to her, and talking to her. I began right there learning everything I could to help her. I also prayed to God that if it be His will to let me keep her I would do whatever I had to do to take good care of her. He graciously granted me that privelege. She spent the two weeks in the PICU and then was transfered to Scottish Rite in Atlanta for two more weeks of Rehab. We expected to be there much longer, but the insurance kicked her out.
She came home on June 8, 1998 to excellent care from Early Intervention services. She is two now and she has come a long way. She has had a bad bout with seizures but we finally got the meds right. She does well with feeding which was our first major hurdle, but still cannot sit up, roll over, or reachout for toys. Her vision is limited but we're not sure how much. We know she sees something. Sorry this is so lengthy, it's one of the few times I've written her story. There is a lot to tell. I really would like to hear from others who have little ones with similar injuries, although I know Haley's is unique, as there seems not to be many babies' stories in this site. This is the first one I've found like this, it is good to relate to so many people. However, I would rather not have to be dealing with this kind of tragedy, as I know you feel the same, it is so very saddening. The Lord is the only thing that keeps me going strong for my little sweetheart and all my family. THanks for "listening' and for sharing.
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