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A Place to Share |
Janet "joy"
I am a married mother of two daughters.I had brain surgery on my left temporal lobe in November of 99.I had a hard childhood. My dad often hit and hurt all us kids,I was hit in the head many times by him.I always thought of David and Goliath in the bible.I thought he was going to kill me.I couldn't take the abuse any more so I moved out on my own.I had symptoms that caused me and others to think I had brain damage but never went any further.I know that because of our injuries we can help others because we understand.Once we get over,why?,why? and deal with ok!ok!.We become stronger and able to understand brain injury and try to help others.I know a lot of good has come from my injury.I have learned that there a lot of caring people in this world and God is there to help us along our path.I feel Gods loving arms around me often.God can make a way when there seems to be no way.well lets move on a little. One night I was home with hubby and kids pretty normal night we went to bed,next thing I know I awake sitting up in my bed with a roomful of strangers all around my bed,they were emts I had a grand mall seizure while sleeping letting out a blood curdling scream almost giving my husband a heart attack.They took me to the hospital I was very confused.That's how everything started.I started having petite mall and very often.Then it started tests,tests,and more tests,then what?my arms started to feel like pin cushions.The dilantin in my blood is checked often and is seldom at the level the doctors wanted.My blood platelets are low so more blood tests my veins are deep and I point out where to go.I.V'S hurt and cause my arms to bruise.I've had MRI's,CT scans showing nothing abnormal with my brain.EEG'S show activity in my left temporal lobe.After many med's trying to control my seizures with no luck.I've been over medicated,barely functioning,unable to awake from sleeping,like in a comatose state.So after a lot of thinking I had to ask what's next? I talked to my neurologist and he mentioned more meds but I said no he then talked about surgery.Brain surgery sounded so extreme and scary.I thought and prayed about it and said lets move on.I got started on a bunch more tests,10 days in the hospital taken off all meds and wired to my brain to measure activity.camera watching me being taped no privacy.then I had a pet scan in Boston on the newest equipment started having a seizure on table but felt at peace with the arms of Jesus around me.Then a Wada test and another neuro psyche test.These test were hard but the doctors learned what they wanted.I was a candidate for surgery.I have gained strength through all this by faith courage hope and support,I know without these my life would be worst off.I had a great surgeon and medical team the operation was 9 hrs long.I have a great God and inner strength fighting to take control of my life.A person can survive surgery and be in better health with little or less seizures,less meds,and a greater control of my needs.I have been blessed by a loving God,caring family,and the angels working through the doctors.God bless keep strong work with your doctors let them know how you feel and don't give up stay strong.Email Janet
