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Joan Sainsbury

I am a mother of a son with a B.I. the results of a football game when he was 27 years old. I have been living with this tradegy for neary 18 years. He is now 46 I am 70 next May. For the past 7 years he has been in a Nursing Home N.H's are set up for old people not young B.I.people and therefore they have no idea how to look after them. This is the second N.H he has been in because the other one was very abusive to him so I had him transfered, this one I have all ready had to bring in the Health Dep. because of their lack of Duty of Care, consisting of lack of hygiene, and several other things that I complained about at the time. Now it is starting again,not enough weekend staff to the extent that one of the wives of one of the residents had to go in to the kitchen and help make the meal or they would not have got fed. No nursing staff to be found when my son wants to go to the toilet so he dirties him self, and eventually when someone is found this person was told not now i'm to busy. I wasn't there that day I have been told all this,and it's not the first time it has happened I'm told. My son is hemi plega left hand side, no short term memory and does require 24 hour care, my main concernis I only have about 5 maybe 6years left to be there for him, my body is braking down and I am not getting around like I use to. I am very concerned about who looks after him when I die, who makes sure he is being treated properly. I would like some peace of mind about thisbut every one I turn to doesn't want to know about, I have been in touch with local M.P. Federal M.P. 6 weeks ago I wrote to them I am still waiting for a reply, I am so heart broken over all this I dont know which way to turn. There is no body else, there is only me to stand up for him.Some one help me please and tell me what to do.

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