my name is julie and i am a 26 year old woman from england.i was never ill much untill what was supose to be the happiest time in my life the birth of my first and only daughter.six weeks after i gave birth i was woken in the night to see a ambulance man and my bedroom full of people,i didnt know what had happened.they told me i had a bad fit,well this shocked me as it had never before.they took me hospital for precaution and they released me saying that allot of people have a single fit in there life time.ten months went by and i had another,the same set of circumstances,this time i was referred to see a neuroligist but not before another one hit me.Dr C saw me and said that i had to have an mri to rule out anything nasty but he thought it was just epilepsy.the mri came and i immediatly knew something was wrong,they done some extra scans and gave me an injection.that was before christmas and i recieved a letter saying i had to go back to see him at the begining of january.i was then told they had found a lesion on the brain,but was unsure of what it was.so i had regular scans to check its growth,my next mri was due just before my wedding and i wouldnt get the results till after.yet another wonderfull moment in my life dampened.the first scan was clear it hadnt grown.then in january of next year i had just recieved my licence to drive back and i was busy taking advantage of if.i was about to go to the supermarket when i bumped into my neighbour and stopped to chat,when bang i went.i think god was looking after me and my daughter that day because if we hadnt stopped to chat i would have been driving.this was an out of charactor fit as it was in the day and because my hubby nagged me i rang Dr C he brought forward my mri and it showed a change.i was advised to go in and have a biopsyin june of this year.i was told that most people go in and are out the next day but obviously there were risks but you never really think they apply to you.i had the biopsy on the 9/5/2000 and it was our first years wedding anniversary the following day.i came out fine but within an hour i was fitting bad and that continued for 5 days,they said i had a bleed but then the fits settled down to just partial siezures.thats when my life changed the biopsy results were good but i wasnt my life isnt the same,i am now going through chemotherapy for the tumour and crossing my fingersthat it works or its radiotherapy.they cannot remove the tumour because of where it is and the kind of tumour that it is oligodendroglioma grade 2,glioma's weve there way in and out of brain tissue so its very difficult to remove them without causing damage. my memory is not what it was,im anxious all the time,i cant think of words in my head,i cant stand lots of noise an stress,i have small seizures on a weekly basis and partial seizures about once every 3 weeks,with them come loads of small fits that make my life hell for about 3 days after a partial siezure as well as the chemo,feeling sick and stripping me of everybit of energy i have.ive been told i will have to have radiotherapy in the future and maybe even a debulking surgery later on.

i pray for my family especially my little girl whos only 3,im not scared of dying i just dont want to suffer. this tumour is a chromosonal tumour so i didnt have a chance from the time i was forming in my mums womb.i have not told her that this is why as it would break her heart.

Email Julie