A Place To Share |
Update July 28, 2007
Dear Friends, It's now have been 12 years since my injury with my sub-arrachnoid brain-haemorrhage with an anuresym and I can still tell you, it's a long and very hard journey. Healing is what is making hard. Especially when you don't know why there was no support for any compensation for a woman who has taken on a hard and time consuming work of becoming a Primary Carer, for my invalid husband. The bad part of it is, I collapsed on the job. There was NO car accident, No violence, NO bashing, NOTHING! I just collapsed, from what I think is over-due pressure of caring 24/7. I've been trying to get some answers for the past 6 years about my situation and seemed to be getting no-where but frustrated. So all I got left to do is to warn ALL Carers or all soon to be Carers, that if you do decide to become the nominated Carer for someone you love so well, regardless of who it might be, get some life-insurance behind you! Otherwise you might just end up like me and get nothing but be put on the disability pension and that's it! Life then is what you can make of it 'cause they don't care. The government doesn't care! There so eager to know how much you are entitled to have for the Carers Pension and go through extremes if they think they've been over-paying you but when somthing like this happens, they don't wanna know a bar of you. Hope these words can and will help others who are not in the know. And if for some reason that you DO get injured, take ALL information and costs that may be incurred by you, doctors,transport, ANYTHING that arises during your rehab, make sure you take ALL notes, reciepts and whatever, to back it up. God Bless my friends, the injured and the hardworking Carers. Sweet Aloha, Kapulani
Aloha to all my friends and family, It's on my 10th year of my sub-arrachnoid Brain-haemmorhage with anuresym, and I'll have to say, it's a very hard and complicated life which started to play up for the past 4 years! I'm certainly NOT the woman I use to be! I sit here each day looking for answers, searching through the internet and although my mind feels like it's going to collapse, I keep telling myself, Don't give up! So, what keeps me ticking? My children and grandchildren! They, are what gives me the boost. My poem that I wrote is on www.biansw.org.au This poem was created in 1992 when I was Caring for my ex-husband. How did it happen? I was having this very bad headaches and I thought it was because of the 24/7 job looking after my husband and 2 little active young boys. We were at an in-laws party when I started feeling unusual, like a baby was going to pop out! So I desperately got my sons in the car and headed for home( about 20 minutes drive). I can remember praying, that I could get my sons home safely. As I got home and walked in the house, that's when I collapsed, I remember calling my husbands name, but that was it! After the surgery, it took me a while to understand what happened. I can remember screaming to the top of my lungs when I was finally able to shower myslf to find half my head bald filled with stitches, with the other side of my head was as long as a hawaiian girl would have. It was like a nightmare! Through-out the years that has gone by, I could never feel the same way that I use too. To cut a long story short, please, if you are Caring for someone, make sure that you are covered by private insurance, because with-out it, you'll be on the Disabled Pension too. Talk again soon. Lots of hugs and cuddles. Sweet Aloha, Kapulani If u wanna email me please do at: kapulanee@hotmail.comEmail Kapulani